ODP - Open Directory Project
"The Open Directory Project is the largest, most comprehensive human-edited directory of the Web. It is constructed and maintained by a vast, global community of volunteer editors."
Health: Conditions_and_Diseases: Genetic_Disorders: Sanfilippo_Syndrome:
See also:
- Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue (263)
- Health: Conditions and Diseases: Nutrition and Metabolism Disorders (408)
- Health: Conditions and Diseases: Rare Disorders (131)
- Bennett Children's Foundation - Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support..
- Ben's Dream - Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter..
- Children's Medical Research Foundation - Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation..
- Frankiepants - Personal site about a child with this disorder. Provides details about the condition..
- MPS III - Information, including the causes, different forms, the inheritance and how the disorder progresses..
- The Sanfilippo Children's Research Foundation - Canadian based charitable group founded by the parents of Elisa Linton..
- Special Child: Disorder Zone Archives - Sanfilippo Syndrome - Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect..
|
| |
|

