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Health: Support_Groups: Conditions_and_Diseases: Genetic_Disorders:
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- Alliance of Genetic Support Groups - National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions..
- Chromosome 22 Central - Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and malformations..
- Chromosome Deletion Outreach, Inc. (CDO) - Non-profit voluntary support group for families affected by rare chromosome disorders..
- Chromosome Help-Station - Information on rare chromosomal disorders. Support and advice for families..
- Cornelia de Lange Syndrome (CdLS) Foundation Outreach - Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime..
- Distal Trisomy 10q Families - Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information..
- Forum for Patients with Myotonic Dystrophy 2 - A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2..
- GendersInX.org - Support and encouragement for people with congenital gender variations..
- Ideas - A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15)..
- Lafora body disease research talk - This is a discussion group about lafora body disease..
- Oto-Palatal-Digital Syndrome Family Resource Network - Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome..
- Parents of Polydactyly and Webbed Children - A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others.
- Peter's Anomaly Support Group - An online support group for people dealing with Peter's Anomaly..
- S.O.F.T. - A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders..
- S.O.F.T. - Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts..
- Thomas Scott Davidson - This is a memorial website for Thomas Scott Davidson who died from Anencephaly..
- Trisomy 18 Angel - This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18..
- Trisomy 18 Moms - Lists Trisomy 18, Edwards syndrome memorial site, help making a website, and share a story..
- Trisomy 18 Support Online Community - Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey..
- Unique Rare Chromosome Disorder Support Group - Support and information for families of children with rare disorders..
- Who is EPI ? - The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria..
- X-Linked Alpha Thalassemia M/R Syndrome - Features a Yahoo! group for family support for individuals caring for others affected by "Alpha Thalassemia Mental Retardation Syndrome (ATR-X)..
- Yahoo Groups Floating Harbor - An active support site for the parents and families of children with Floating Harbor Syndrome..
- Yahoo Support Group for CMT-HMSN-HNPP - A very active support group that prides itself on helping its members through the good - bad days and posting the latest CMT/HMSN/HNPP research information available on the web..
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